Further to my previous post about the complaint about Cochrane’s Editor in Chief, I wrote to the Cochrane support address given if you want to contact Cochrane’s Governing Board. 24 June 2023 Dear Cochrane Support (cc Gillian Leng, Lorraine Ross, Charity Commission) I have asked at least once for you to forward correspondence regarding complaints… Continue reading Email to Cochrane Governing Board: 24 June 2023
Tag: ME/CFS
Preparing a complaint to Cochrane: January 2023
I am preparing to send a complaint about Cochrane Editor-in-Chief Karla Soares-Weiser for allowing Cochrane authors to ignore an explicit instruction from arbitrator Gordon Guyatt to highlight in the amended Exercise Therapy for Chronic Fatigue Syndrome that exercise has no important effect on fatigue. I have written to Cochrane CEO Catherine Spencer for more detail… Continue reading Preparing a complaint to Cochrane: January 2023
Letter to Cochrane with a suggestion about the update to the Exercise therapy for ME/CFS review: 19 March 2022
Yesterday I wrote to Rachel Marshall, the Cochrane Senior Editor who is managing the project to update Cochrane’s review of Exercise Therapy for ME/CFS. There have been no updates on the progress of the review since July last year, despite a commitment from Cochrane to keep patient groups regularly informed of progress.” I copied in… Continue reading Letter to Cochrane with a suggestion about the update to the Exercise therapy for ME/CFS review: 19 March 2022
Reply from Gill Leng, ex-CEO of NICE, 27 January 2022
On 27 January 2022, Gill Leng replied to my email of 31 December 2021. I have posted her reply below. Her understanding of the key issues I raise is probably greater than her reply would suggest. This selective understanding avoided addressing the issues I am most concerned about. Firstly, that NICE has entered into a… Continue reading Reply from Gill Leng, ex-CEO of NICE, 27 January 2022